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Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts

Friday, February 3, 2012

Do you live life or are you just existing?

Many of us, including myself, often find ourselves stuck in life living day to day merely existing. Our lives become repetitious. That's when I pull myself out of the boredom and start living life again. It's something many people suffering from health problems also can find themselves falling into.

It would be so easy to give up on life and just exist when faced with a devastating illness such as my mom having stage 4 cancer. However, her love for life has brought new opportunities and she's the first one to tell you she hasn't done everything yet.

Shes the person who always enjoyed travel and dreamed of one day doing that after retiring. My Dad, on the other hand, is more of a home body. When she was diagnosed we made every effort to give her these opportunities.

Last summer she went with a friend up the north shore. The two of them had a blast. We seen to it she accomplished her number one dream when we sent her and my Dad to see Tony Stewart.wEndy had the time of their lives in Kansas city last fall. Dad even left the state. And now as she prepares to head to Vegas in march she will once again visit friends and see the big NASCAR parade. While some would just exist she is still choosing to live life to the fullest.

Let us all remember to live each day like it's our last.

Thursday, January 26, 2012

Another crazy Thursday to the cancer center

Today is thursday and that means its time for the cancer center. Since chemo was last week all we have today is moms Procrit. She's trying to convince the nurses to take it for her today but so far no dibs.

As I sit in the waiting room I watch as most are quiet. The mood is serene yet anxious. Some have been through quite a battle while I can see others look new and scared of what lies ahead.

Mom is always upbeat and cheerful! Then again she's good at hiding emotions and always being strong. What appears to be may not always be what she's feeling deep inside.

Today she is excited as she announces she only has a 30 day wait for Vegas and NASCAR! The nurses greet her as if they've known her for a life time. Always happy to see her and some of the best care I've ever witnessed. She loves to pull pranks on all of them and dress in many disguises.

Today she has me drawing a face on her head. She claims she doesn't know if she's coming or going. All I can do is laugh and hide.... !!!

My life is sure gonna be ho hum one day.....


Tuesday, January 3, 2012

Idaho teen looses cancer fight after delivering son

POCATELLO, Idaho – Jenni Lake gave birth to a baby boy the month before her 18th birthday, though she was not destined to become just another teenage mother.

Lake, who decided against treatment for tumors on her brain and spine so she could carry the baby, died of cancer on Nov. 21, 2011, 12 days after giving birth to Chad.

While being admitted to the hospital, she pulled her nurse down to her at bed level and whispered into her ear. The nurse would later repeat the girl's words to comfort her family, as their worst fears were realized a day after Jenni's baby was born.
"She told the nurse, 'I'm done, I did what I was supposed to. My baby is going to get here safe,'" said Diana Phillips, Jenni's mother.
In photographs, the baby's ruddy cheeks and healthy weight offer a stark contrast to the frail girl who gave birth to him. She holds the newborn tightly, kissing the top of his head. Jenni, at 5 feet and 4 inches tall, weighed only 108 pounds at the full term of her pregnancy.
A day after the Nov. 9 birth, Phillips learned that her daughter's decision to forgo treatment for tumors on her brain and spine so she could carry the baby would have fatal repercussions. The cancer had marked too much territory. Nothing could be done, Phillips said.
It was only 12 days past the birth — half spent in the hospital and the other half at home — before Jenni was gone.
Even so, her family and friends insist her legacy is not one centered in tragedy, but rather in sacrifice.
This month, her family gathered at their ranch style home in Pocatello, where a Christmas tree in the living room was adorned with ornaments picked out just for Jenni, including one in bright lime green, her favorite color. She had passed away in a bedroom down the hall.
Recalling Jenni's infectious laugh and a rebellious streak, her mother held the baby close, nuzzling his head, and said, "I want him to know everything about her, and what she did."
———
The migraines started last year, when Jenni was a 16-year-old sophomore at Pocatello High School. She was taken to the family doctor, and an MRI scan found a small mass measuring about two centimeters wide on the right side of her brain.
She was sent to a hospital in Salt Lake City, some 150 miles south of Pocatello, and another scan there showed the mass was bigger than previously thought.
Jenni had a biopsy Oct. 15, 2010, and five days later was diagnosed with stage three astrocytoma, a type of brain tumor. With three tumors on her brain and three on her spine, Jenni was told her case was rare because the cancer had spread from her brain to another part of her body with no symptoms.
Her parents, who are divorced, remember they were brought into a room at the hospital and sat down at a long table as doctors discussed her chances of survival.
"Jenni just flat out asked them if she was going to die," said her father, Mike Lake, 43, a truck driver who lives in Rexburg, north of Pocatello.
The answer wasn't good. With treatment, the teen was told she had a 30 percent chance to make it two years, Lake said. While he was heartbroken, Lake marveled at how strong she seemed in that moment. "She didn't break down and cry or anything," he said.
But her mom recalled Jenni did have a weak moment that day.
"When they told her that she might not be able to have kids, she got upset," said Phillips, 39.
Jenni started aggressive chemotherapy and radiation treatments, while also posting videos on a YouTube site titled "Jenni's Journey," where she hoped to share her story with updates every other day. She managed to upload only three videos, though, as her treatments left her tired and weak.
On her second video, posted Nov. 20, 2010, Jenni appears distraught while a family friend records her having lunch with her mom.
"Last night, like, I was just lying in bed and I was thinking about everything that was going on and it just like, it just hit me, like everything, and I don't know, it made me cry," Jenni says on the video.
Her mom is shown burying her face in her hands. "Do you know how hard it is to be a mom and know that she's sick and there's nothing you can do," she says, before collapsing into tears.
Jenni persists: "It's hard. It's like, I don't know how long this is going to last and I just want it to go away … I feel like this is holding me back from so much …"
By March of this year, the tumors had started to shrink, the family said.
In a picture taken at her prom in early May, Jenni is wearing a dark blue strapless dress and gives the camera a small smile. There's a silver headband in her hair, which is less than an inch long. Chemotherapy took her shoulder-length blond tresses.
Her boyfriend, Nathan Wittman, wearing a black dress shirt and pants, is cradling her from behind.
———
Jenni started dating Nathan a couple of weeks before she received her diagnosis. Their adolescent relationship withstood the very adult test posed by cancer, the treatments that left her barely able to walk from her living room to her bedroom, and the gossip at school.
"The rumors started flying around, like Nathan was only with her because she had cancer," said Jenni's older sister, Ashlee Lake, 20, who tried to squelch the mean-spirited chatter even as the young couple ignored it.
They were hopeful, and dreamed of someday opening a restaurant or a gallery.
Jenni had been working as an apprentice in a local tattoo shop. "She was like our little sister," said the owner, Kass Chacon. But in May, Jenni's visits to the shop grew less frequent.
She had been throwing up a lot and had sharp stomach pains. She went to the emergency room early one morning with her boyfriend and when she returned home, her family members woke up to the sound of crying. "We could hear Jenni just bawling in her room," said her sister, Kaisee, 19.
She had learned that she was pregnant, and an ultrasound would show the fetus was 10 weeks old.
Jenni's journey was no longer her own.
From the start of treatment, she was told that she might never have children, her mother said, that the radiation and chemotherapy could essentially make her sterile.
"We were told that she couldn't get pregnant, so we didn't worry about it," said Nathan, 19.
Jenni, the third of her parents' eight children, had always wanted to be a mom. She had already determined to keep the baby when she went to see her oncologist, Dr. David Ririe, in Pocatello two days after she found out she was pregnant.
"He told us that if she's pregnant, she can't continue the treatments," Phillips said. "So she would either have to terminate the pregnancy and continue the treatments, or stop the treatments, knowing that it could continue to grow again."
Dr. Ririe would not discuss Jenni's care, citing privacy laws, but said, generally, in cases in which a cancer patient is pregnant, oncologists will consider both the risks and benefits of continuing with treatment, such as chemotherapy.
"There are times during pregnancy in some situations, breast cancer being the classic example, where the benefits of chemotherapy may outweigh the risk to mother and baby," Ririe said. "There are other times where the risk outweighs the benefits."
There was no discussion about which path Jenni would choose. Her parents didn't think of it as a clear life or death decision, and Jenni may not have, either. They believed that since the tumors had already started to shrink earlier, she had a strong chance of carrying the baby and then returning to treatment after he was born.
"I guess we were just hoping that after she had the baby, she could go back on the chemotherapy and get better," her mother said.
———
Jenni and Nathan named the baby Chad Michael, after their dads. Nathan has legal custody of the child, who is primarily cared for by Nathan's mother, Alexia Wittman, 51.
"Nathan will raise him," she said. She brings the baby to Jenni's house to visit her family whenever they ask.
Jenni didn't show regret for her decision, not in the final weeks of her pregnancy as she grew weaker, and not when she started to lose her vision as the cancer took its course, her family said.
Jenni's last words were about her son as he was placed beside her a final time, her father said. As she felt for the baby, she said: "I can kind of see him."
———
Jenni's Journey: www.facebook.com/jennis.journey
Jenni's YouTube videos: http://www.youtube.com/jennisjourney
Copyright 2011 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.
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Wednesday, December 7, 2011

When caregiving ends

Family caregivers experience a range of emotions and stages in their lives when providing care for a loved one. Several different resources cite levels of caregiving, and while some stages differ depending on the source, one fact remains constant – eventually, the caregiving will end.

If you are caring for an elderly relative, the end of your caregiving days may be marked by the death of your loved one. As a caregiver, you have experienced the ups and downs of caregiving – taking time from your own family responsibilities to provide care, perhaps suffering a financial burden and balancing multiple budgets, and realizing your loved one is not who he or she used to be. You have incorporated caring within the possibly already hectic routine of caring for your own family, work, and other responsibilities. It has been hard and stressful. However, your love for the one you cared for made caregiving worth your while.

It is not uncommon for the post-caregiver to feel an utter sense of loss when caregiving ends. You will experience heartache as you mourn the loss of your loved one, but you also find yourself at a crossroad in your life as to what to do now. No more phone calls for assistance. No more visits filled with playing games, dining together or simply reminiscing about good times. When once you felt worry over your loved one, that burden is gone - leaving behind a void in your life. Your grief is compounded as it overlaps the sense of who you are…and who you are going to become once the caregiving phase has ended. Your entire daily routine is filled with broad gaps that once were filled by the physical and emotional acts of caregiving.

You may find it interesting to know some research shows that many caregivers are better situated to deal with the end of their caregiving days than they realize. The family caregiver has lived this role, possibly for quite some time. Caring for an elderly loved one, especially a mother or father, illustrates the essence of life coming full circle. People in these roles have faced and grieved the loss of their loved one long before physical loss occurs. Once caregiving ends, there is a mourning process but there is also a sense of frightening wonder as to where to go from that point.

However, research shows that once caregivers overcome the immediate sense of loss, they find they are organized, financially savvy and highly efficient. Post-caregivers are also able to identify and balance their own wellbeing better than non-caregivers. These qualities may put them heads above the rest in terms of gainful employment after caregiving responsibilities end. Adjusting to new life may be a change, but their experience as caregivers presents a set of tools that help determine their next steps in life.

This is good news and important for family caregivers to know. While it may be sad for a loved one to pass away, post-caregivers can look back and know they accomplished something meaningful, worthwhile, and made a difference in the life of someone else. They realize how they enriched their own lives through the caregiving process and find comfort in the experience. Once this knowledge takes root, these post-caregivers can set forth confidently, and continue making a positive impact…wherever they may choose to go.







References

Marla Berg-Weger, Ph.D., LCSW, Doris McGartland Rubio, Ph.D. & Susan Tebb, Ph.D., LSW and Lisa A. Parnell, MSW (2011).
When caregiving is over: the well being of caregivers of parents of dementia. http://www.caregiver.com/articles/caregiver/when_caregiving_is_over.htm.



Friday, November 18, 2011

The dirty little secret

I hope be revealing this secret it doesn't bring a rash of phone calls, text messages and emails from long lost relatives. Theres nothing more frustrating then 50 lost relatives rushing in to act like your best friend when they think your gonna die and then disappearing once again. Honestly?
With that in mind, please respect our right to some peace and quiet.

Why is the possibility of cancer a dirty little secret for some men? Honestly! Isn't this a time to lean on family? Not all would agree. Some people, maybe through denial or anger try to bear it alone. My husband included.

I'm sure he will be angry but I'm about to disclose his dirty little secret. The truth is for the past week my husband and I have tried to stay strong and be there for everyone else when what absolutely no one knew was he was being evaluated for testicular cancer.

Thankfully, after further evaluation, it's looking like were safe for now although he does still have to meet with a specialist.

So why do some keep cancer a secret? Why are some embarrassed about cancers like testicular or breast cancer? Please, please remember to get checked and don't ever feel ashamed or embarrassed.

As it turns out he's at greater risk of skin cancer. He will have a removal in a couple weeks.

Just another curve-ball in our lives!

Tuesday, June 14, 2011

What is hair anyway?

Why is it in society we put so much thought or care into ones hair? We color it. We straighten it. Curl it. Spend hours styling and maintaining it.
Earlier today my daughter-in-law straightened my 3 year old granddaughters tight and beautiful ringlet curls. Although it was cute and done in fun my granddaughter was sad. She didn't recognize herself and neither did we. We've all grown accustomed to her beautiful curls.
Later on my mother was crying as she noticed her hair was once again falling out after just her first round of chemo. Just recently she'd started hair growth after going into a 9 month remission from the last time. Now to me she's just as beautiful as ever. I'm just thankful she's feeling well and we pray for her to beat this again. With or without hair. But she is devastated as you can imagine.
So why do we put so much emphasis on how we look? What really should matter is a persons attitude. Who they are. What we become. How we treat others. Beauty is only skin deep. With or without hair. Curls or straight...
I love them just the same.

Thursday, May 26, 2011

The Journey...Ovarian Cancer and the Fight to Live

I often speak about my family and special moments in my life. This week even I'm living on the edge. My already crazy life is somewhere between my norm and loosing my mind. So many life changes are occurring so swiftly I cant catch my breath and time stands still for no one. To be honest, I think about my blog daily but I cant find a moment of time to put down the racing thoughts which speed through my mind.

Yesterday at a routine appointment with my Mom. My suspicions were confirmed. Her ovarian cancer is once again bearing its ugly teeth. The doctor informs us its stage 4 and because she was in remission for 7 months its now considered chronic. My mom is an extremely strong person. Stubborn and bullheaded and does not give up the fight easily. However, when the doctor said this is the way its going to go now. Chemo, chemo, chemo until she looses the fight. I completely fell apart!

Ive decided to start a documentary on our journey through cancer and this battle together. She and I and my 5 year old have done it all the past year. So this time, video camera in hand, we will go everywhere. Its unfortunate we've already had problems with the camera but I will be using a different one and hope to educate the public as well as leave something behind for our children and grandchildren. A time capsule of moms memories as told by her.

I am concerned about my 5 year old and how she will handle all this. I plan to be honest and upfront.  I pray with all my heart and soul for my mother. I know she can beat this or give it a heck of a battle. I ask all my friends, family, and followers to pray for her and give her the strength to once again beat the odds on this horrific illness.

Please follow my family and offer any words of encouragement or advice you may have. We learn in life through one another.